Resources and Education

Where Can I Learn More About Genetic Counseling?

Below are some websites that can provide useful information about genetic counseling and inherited conditions:

National Society of Genetic Counselors : Learn more about genetic counselors and their services.

Genetics Home Reference: Basic information about genes, chromosomes, and many genetic conditions.

Unique: Unique is a UK-based organization that connects families and provides information about rare chromosome disorders.

National Down Syndrome Congress and National Down Syndrome Society: Two national organizations that connect families and offer resources and support.

Prader-Willi Syndrome Association: Support and resources for individuals with Prader-Willi syndrome and their families.

National Cancer Institute: Information about genetic changes that lead to cancer.

FORCE (Facing Our Risk of Cancer Empowered): A group and website dedicated to discussing and fighting hereditary breast and ovarian cancer. The site contains many personal stories of women and men who carry mutations in BRCA1, BRCA2, and other genes associated with hereditary cancer syndromes.

Sharsheret: “Sharsheret, Hebrew for “chain”, is a national not-for-profit organization supporting young women and their families, of all Jewish backgrounds, facing breast cancer.”

Bright Pink: Bright Pink is a national non-profit organization focused on prevention and early detection of breast and ovarian cancer in young women.